Tonight is one of those nights, where I think I am just over tired. Both Lauren and Gavin got sick this week and now Jay, I think I may be too, but I haven’t had time to notice. As I rocked Gavin tonight I just kept singing “You are my sunshine” I used to sing it to him all the time in the hospital, because it was true, especially that second verse: you’ll never know dear how much I love you, please don’t take my sunshine away, the other night dear when I was sleeping I dreamt I held you in my arms, when I woke dear I was mistaken, so I hung my head and I cried…why do they make lullabies like that?! We’ve also are having some major issues with his machine, as it alarms every hour, that scene in office space where they all go after the fax machine, I can’t say that hasn’t crossed my mind at 2 a.m., and 3 am and 4 am—although I do remember a time in my life when those hours didn’t seem so crazy!
Gavin had his 6 month apt, 13 lbs 14 oz, 24 inches long… a little short and light, but hey, nobody after said Jay or I were giants! Lauren and him had a giggle fit tonight, I really believe that little kids understand each other, its so very cute! Lauren is all Ms. I can do it myself now (except sleeping, that we definitely can’t do!) because she is the big three year old as of the 26th!
We had a wonderful kick off idea campaign this weekend thanks to all those who attended again, Gavin will be thanking you over and over again as he grows!
Gavin saw his first Packer’s game tonight…we had to tell him about Farve’s earlier years… Hope this finds you well, I was surprised when we saw over 600 people visited the site, it just reminds me how lucky we are to have so many people thinking of Gavin, every kind thought helps! It also reminds me how important it is to become a donor—there is no greater gift or way to live on!
Gavin is adorable, but thats not anything new, he was laughing BIG TIME at Lauren tonight and that was so fun to see(at Lauren’s new joke, “what’s Beethoven’s fav fruit?….Bannannanaaaa”)Thanks Abby for that one. Sometimes I wonder how he is so loving after everything that he has gone through. I think it is just a reminder to always carry the good with you and discard the bad—and that laughter is really good medicine. I can’t wait to see the boy and man he becomes. I’m going to bed, the kids won today, I think I am the most tired! Remember when 9 pm seemed early?!
CALL TO ACTION
There are two bills that you should write to your congressman about(find your representative and email at www.congress.org ), its listed by states:
Medicare Fairness for Organ Transplant Recipients, Act of 2005 and the Immunosuppressive drug coverage for transplant patients Act of 2005… send an email to your congress rep, asking them to support these bills—in supporting these bills they will be supporting life…this is a quickie that if you don’t have time to write your own, you can cut and paste:
I am writing regarding the Medicare Fairness for Organ Transplant Recipients Act of 2005 and the Immunosuppressive drug coverage for transplant patients Act of 2005. I urge you to support these bills.
As someone who has witnessed the expenses of financing the cost of their sons necessary medical expenses, it would create a huge relief from yet another financial burden. Not covering the medications after transplant is like giving someone a car and not the keys; youâ€™re left with one that will not function without the other.
I would like to hear a response regarding this issue and urge you to get fellow supporters to help get this bill passed—support life.
This bill will not just aide Gavin, but all organ recipients in their struggle, it would give medicare the ability to supply the drugs needed in order to make a tranplant last! Thanks! Love, Jill