It’s day 3 and things are looking a little brighter, Gav is up and moving and seems to be doing well without his pain meds. He looks normal again so I am starting to relax some (okay so there is no such thing as relaxing in a hospital, but feel less anxiety for sure). He played with his cousin Annalyse today in the hospital crib and managed to steal her nuk right out of her mouth. You would have thought that he won a gold medal in successfully swiping the nuk because he was grinning from ear to ear, he just kept taking it out and putting it back in – Annalyse on the other hand did not appreciate the gesture!

Thanks Julie for calling and keeping me optimistic (I hope that the small fire has been extinguished), sometimes you just need a little nudge to keep going. Jay always tells me that it’s a marathon, not a sprint, at first I thought it was catchy, but now it drives me somewhat crazy, but it’s 100% true. Can’t let anything knock you down too long. I heard a quote, life is not about how many breaths you take but how many moments take your breath away. He does take my breath away. I could just kiss his dialysis machine and whoever invented it. It gives him life, all this, all these battles are so that he can live, what an innate survival instinct babies come with—now it’s our job to make sure that his life and world are worth it! Hope you are all having fun, still no expected date of release, but we will see, I hope not too much longer! Hugs, Jill