Well, the bubble has somewhat burst, since Gavs and I are sick, again…ugh! It was sweet though, we took him to the doctor today and his big sister, Lauren, would not leave his side. She told the doctor it was because Gavin likes her and she made sure that he was not hurting him, because she was his “big sissy”, my little warrior princess. For me however, she wanted to watch me get my flu shot so I had to be brave. She is fascinated with shot giving, hence she watches the growth hormone shot being given to Gavin. Funny how a little needle makes you cringe, but it wasn’t so bad. She also wanted to make sure that I wouldn’t be ‘left behind’ and that I would be coming home. She doesn’t like me going to see the doctor after I had to stay in the hospital last year. She was taking her mommy home and that was that.

Gavin is falling short on his development milestones, which I know is no surprise but it’s just frustrating. I just want things to be easy for him, he shouldn’t have to work so hard for everything. Whenever the doctor asked a question I felt like saying, “ya he does that, of course he does that… he crawls, he says mama, dada”…but—-nope none of the above, I just wanted him to stop asking.

When you have a sick kid, sometimes it’s like being caught in a forest fire. It feels like it’s coming fast and it’s right behind you and you are just trying to stay ahead of it and put out the little fires along the way. You’re just clutching and running as fast as you can trying to get out of the grasp of this disease. You just want it to go away and stop, but it’s relentless.

Anyway, I am just beat, this cold has us both wiped out and Gav is losing weight again. I absolutely hate the numbers 14 and 15 because we have been between 14 and 15 lbs for like two months now. I know it could be worse, I know that we are so lucky that he eats on his own, but I think we will throw a party when we see 16 lbs! I anticipate a feeding tube for Christmas, my poor baby. But thank God for green beans because for the last three days, it is the only solid food that he will eat.

He’s obsessed with babies, they make him light up…it’s fun to see and he does this new lip thing. He’s getting jealous of his sister when she has a sippy cup and he doesn’t. He wants to be part of all the action, especially if there is a flashlight to be found. He’s such a miracle! Hope this finds you all well and enjoying the holidays around you! We have seen such kindness through all of this, it’s heartwarming to see how much good this world has to offer. I know that someday, my kids will be out there “passing it on”. Take Care!

I regret it already; I heard we are going to get like 7 inches of snowfall, go figure. But it will be nice to have a white Christmas. Gavin giggles hysterically when we say ho, ho, ho… So you can only imagine how often that is pulled out in this house! It is so cute, if you say it behind him; he actually tries so hard to see you that he just tips right over. Or if you are Lauren, you run continuous laps around him while shouting — it looks like a cat trying to follow a ball. It’s pretty adorable. He had his physical therapy again the other day; we are having some regression with the rolling, so we have to start working on that again. They think that it may be a little more uncomfortable for him because he has his dialysis fluid in there at all times, so maybe a little squishy belly. On the up side he is starting to support his own weight when sitting and is moving and reaching without hesitation.

Post surgery he has so many opinions that the instant that he doesn’t like something he is giving out scoldings. Gavs is so used to being in happy mode at all times, so he looks at you in such shock when you try to make him do something. Those big brown eyes give you the “hey, what is this all about?” He and Lauren went to get Christmas lights yesterday and they are both in love with those dancing holiday characters. We must have sat in the aisle (pressing every button at the same time mind you, I am sure the employees loved us) for an hour. Lauren was dancing away and Gav was shaking his little happy hands. The kids love having the big tree (thanks Traci) up this year and it sure feels more like Christmas. Last year I was in the hospital until right before Christmas so it feels good to have the building anticipation and watch Lauren’s growing fascination and excitement! And how do I love Santa’s naughty or nice list – we are all on our most pristine behavior this month 🙂 Its going to be a great holiday!

[mygal=gavinandlauren]